Recently diagnosed with narcolepsy-gctid44

American Sleep Association Forums General Public Narcolepsy Recently diagnosed with narcolepsy-gctid44

This topic contains 1 reply, has 4 voices, and was last updated by  Angelaw 2 years, 10 months ago.

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  • #13302

    Angelaw
    Member

    I am 28 years old and was just diagnosed with narcolepsy. I am actually happy now that I have a diagnosis that explains my symptoms.

    For the past 8 years, I have struggled with school, work, family, because they think that I am lazy or uninterested in life or whatever activity is important at the time…because I am so sleepy.
    Now that I have the diagnosis, I realize that this is not a problem of laziness but sleepiness. And I hope that people around the world realize that there is a difference.
    I am sure that this probably relates to people with other sleep disorders too.

    I have started a medication for my narcolepsy. So far so good. I am optimistic that I will be able to be less sleepy soon.

    I am curious how other people do with there lives, school, family, work… after treatment of narcolepsy (or any other sleep disorder that causes this much sleepiness).

    #13303

    Angelaw
    Member

    The name of the medication is Provigil

    #13315

    DrCSingh
    Member

    Good for you –

    I know many narcoleptics who live normal lives and exceed at what they do.

    I am sure that more about this disorder will be known within the next 5 years.

    "Angelaw" wrote: I am 28 years old and was just diagnosed with narcolepsy. I am actually happy now that I have a diagnosis that explains my symptoms.

    For the past 8 years, I have struggled with school, work, family, because they think that I am lazy or uninterested in life or whatever activity is important at the time…because I am so sleepy.
    Now that I have the diagnosis, I realize that this is not a problem of laziness but sleepiness. And I hope that people around the world realize that there is a difference.
    I am sure that this probably relates to people with other sleep disorders too.

    I have started a medication for my narcolepsy. So far so good. I am optimistic that I will be able to be less sleepy soon.

    I am curious how other people do with there lives, school, family, work… after treatment of narcolepsy (or any other sleep disorder that causes this much sleepiness).

    #13382

    kjohnson
    Member

    You might also check out the Narcolepsy Network. It is a national health awareness group for persons with narcolepsy and those who work to help improve the lives of those suffering from narcolepsy. Their website is:

    http://www.narcolepsynetwork.org/

    #13806

    NickOsteo
    Member

    Many patients report significant improvements with the wake promoting medications available. There has been a very apparent trend away from amphetamines.

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