American Sleep Association is not affiliated with any of these outside support groups.

7 thoughts on “Support Groups and Resources

  1. Pam Reply

    Maybe we can start a chat room or somekind of insomnia support meeting place where we can meet when we cant sleep.
    I have struggled on an off for a few years it comes and goes. Lately its getting worse. Im afraid of going to sleep because i will be up all night.
    Im not on any sleep meds yet but am thinking i might need some.

  2. Tori Reply

    If anyone has insomia and would like to talk, let me know. I have not been able to sleep much in the past two weeks and it’s getting to me. I just need someone to talk to.
    Is anyone a part of an insomnia support group?

  3. aimee Reply

    I am 16 and have had insomia for the past 2 and a half years. I have the same nightmere every night and I never sleep more than an hour at a time. I often go days without sleep, and im on two different times of medication. I also wake up bleeding or bruised from things I have done to myself while I was asleep. If anyone has something similar I would love to talk to you, it would be nice to know im not the only one. 🙂

  4. Dav Reply

    All of the time. I don’t always sleep but even when I do I feel tired all the time. Right now it’s 4 a.m. and I wish there was someone to talk to.

  5. Ilene Heyman Reply

    I have had an issue with daytime drowsiness, not narcolepsy or sleep apnea. I had the sleep study and it just came out ad nonspecific hypersomnia. I fight it and pursue everything but my eyes always tired . I never feel refreshed even after 8 hours of sleep. Past 5 seem to be ready for bed but just got over severe depression so I stay very active . I get very drowsy when exercising. Anyone else have these issues?
    I would love to meet with people and discuss.

    • Frances Reply

      I also suffer from daily fatigue and trying to get a diagnosis. I just slept 20 hours straight. I take a narcolepsy medicine every morning but that doesn’t help enough. I just made an appointment with a John Hopkins neurologist for June 7th. The daily fatigue is making it difficult for me to function and work. I also have psoriatic arthritis that can cause fatigue but usually not extreme fatigue like I have.

  6. Sandy Bridge Reply

    Are there any groups for idiopathic hypersomnia or does that just go along with narcolepsy group?

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