American Sleep Association is not affiliated with any of these outside support groups.

11 thoughts on “Support Groups and Resources

  1. angie Reply

    Are there any support groups for the partner of people who suffer with REM behavioral sleep disorders?

  2. Nancy Perlman Reply

    I’ve suffered with insomnia all my life. Seems my life is backwards sometimes and no “ normal “ people get it. I just wanna talk to someone like me

  3. Pam Reply

    Maybe we can start a chat room or somekind of insomnia support meeting place where we can meet when we cant sleep.
    I have struggled on an off for a few years it comes and goes. Lately its getting worse. Im afraid of going to sleep because i will be up all night.
    Im not on any sleep meds yet but am thinking i might need some.

  4. Tori Reply

    If anyone has insomia and would like to talk, let me know. I have not been able to sleep much in the past two weeks and it’s getting to me. I just need someone to talk to.
    Is anyone a part of an insomnia support group?

  5. aimee Reply

    I am 16 and have had insomia for the past 2 and a half years. I have the same nightmere every night and I never sleep more than an hour at a time. I often go days without sleep, and im on two different times of medication. I also wake up bleeding or bruised from things I have done to myself while I was asleep. If anyone has something similar I would love to talk to you, it would be nice to know im not the only one. 🙂

  6. Dav Reply

    All of the time. I don’t always sleep but even when I do I feel tired all the time. Right now it’s 4 a.m. and I wish there was someone to talk to.

  7. Ilene Heyman Reply

    I have had an issue with daytime drowsiness, not narcolepsy or sleep apnea. I had the sleep study and it just came out ad nonspecific hypersomnia. I fight it and pursue everything but my eyes always tired . I never feel refreshed even after 8 hours of sleep. Past 5 seem to be ready for bed but just got over severe depression so I stay very active . I get very drowsy when exercising. Anyone else have these issues?
    I would love to meet with people and discuss.

    • Frances Reply

      I also suffer from daily fatigue and trying to get a diagnosis. I just slept 20 hours straight. I take a narcolepsy medicine every morning but that doesn’t help enough. I just made an appointment with a John Hopkins neurologist for June 7th. The daily fatigue is making it difficult for me to function and work. I also have psoriatic arthritis that can cause fatigue but usually not extreme fatigue like I have.

  8. Sandy Bridge Reply

    Are there any groups for idiopathic hypersomnia or does that just go along with narcolepsy group?

Leave a Reply

Your email address will not be published.