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Support Groups and Resources

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13 comments on “Support Groups and Resources”

  1. I had hodgkins disease at 19 ..9 months of chemotherapy.. have had severe insomnia ever since..im 51 now .. when i sleep its 1 to 1-1/2 hours and thats all i get i go 2 or 3 times a week with no sleep. Ive tried every recommendation for sleeping except quitting smoking, my nerves are too bad too quit at moment. I dont drink any caffeine for 2 months on this try,have quit before with no results. This is a 24/7/365 problem, not a occasional deal, been this way for over 30 yrs. Doctors keep saying its depression, but they have tried over 15 different antidepressants with no changes. They have tried ambien, could take 2 and not fall asleep. I recently got diagnosed with stage 3 kidney failure caused by me not properly caring for my diabetes, i stay so tired,depressed,and disgusted over not getting the help i need i just didnt care. I have mental issues and i am on disability after a long struggle to get approved. I have no friends due to mental issues, if i did i would see if any knew where i could get pills to help me off the street. Its the only option i have since doctors will not help. Is there anyone on here that has had my sleep problem also? Any information on how to get the help i need would be appreciated. Ive done everything but get on my knees and beg doctors. Its like they simply dont care how hard this is on me. I recently had my first grandchild born and i dont see myself living to see her 5th birthday, the struggle has gotten harder and harder the older i get. I dont see how my heart has held out this long

  2. Going thru insomnia,for years,it's a nightmare, nothing works,2 to3 days with no sleep,need a support group.

  3. I’ve suffered with insomnia all my life. Seems my life is backwards sometimes and no “ normal “ people get it. I just wanna talk to someone like me

  4. Maybe we can start a chat room or somekind of insomnia support meeting place where we can meet when we cant sleep.
    I have struggled on an off for a few years it comes and goes. Lately its getting worse. Im afraid of going to sleep because i will be up all night.
    Im not on any sleep meds yet but am thinking i might need some.

  5. If anyone has insomia and would like to talk, let me know. I have not been able to sleep much in the past two weeks and it’s getting to me. I just need someone to talk to.
    Is anyone a part of an insomnia support group?

  6. I am 16 and have had insomia for the past 2 and a half years. I have the same nightmere every night and I never sleep more than an hour at a time. I often go days without sleep, and im on two different times of medication. I also wake up bleeding or bruised from things I have done to myself while I was asleep. If anyone has something similar I would love to talk to you, it would be nice to know im not the only one. 🙂

  7. All of the time. I don't always sleep but even when I do I feel tired all the time. Right now it's 4 a.m. and I wish there was someone to talk to.

  8. I have had an issue with daytime drowsiness, not narcolepsy or sleep apnea. I had the sleep study and it just came out ad nonspecific hypersomnia. I fight it and pursue everything but my eyes always tired . I never feel refreshed even after 8 hours of sleep. Past 5 seem to be ready for bed but just got over severe depression so I stay very active . I get very drowsy when exercising. Anyone else have these issues?
    I would love to meet with people and discuss.

    1. I also suffer from daily fatigue and trying to get a diagnosis. I just slept 20 hours straight. I take a narcolepsy medicine every morning but that doesn't help enough. I just made an appointment with a John Hopkins neurologist for June 7th. The daily fatigue is making it difficult for me to function and work. I also have psoriatic arthritis that can cause fatigue but usually not extreme fatigue like I have.

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